Monday, March 30, 2009

Some souls are so special, heaven can’t wait……

After 18 days on this beautiful earth, my cousin David and his wife Ashley said goodbye to their sweet baby Maxton. Maxton earned his angel wings on March 21, 2009 at 11:56pm while David and Ashley held him. 

Sweet Maxton was diagnosed with Congenital Diaphragmatic Hernia (CDH) at his 19-week ultrasound. CDH is a life threatening birth defect that affects approximately 1 in 2,400 births every year. CDH occurs when the diaphragm does not fully form, allowing organs to enter the chest cavity preventing lung growth. Every CDH baby is unique and a variety of treatments are performed. There is no way to predict what any given child's outcome will be. The cause of CDH is also unknown.

Ashley wrote about Maxton’s struggles every step of the way in his fight against CDH. She continues to write about her son and how he touched so many lives in his short time with us. Her strength is amazing. You can read her blog here.  

Tomorrow, March 31st, is Congenital Diaphragmatic Hernia Awareness Day.

This painting was for Maxton’s nursery. I’ve made it into a memory painting to celebrate his life.  I mailed it this morning.

Some souls are so special, heaven can't wait. - unknown
Those we have held in our arms for a little while, we hold in our heart forever. -unknown
Every time I think of you I thank God. -Philippians 1:3

Please pray that David and Ashley will have comfort in knowing there are many prayers going up for them and baby Maxton.

You can read more about CDH and the organizations that help families within the CDH community at the links below:
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2 comments:

  1. Maxton's MommyMarch 31, 2009 at 9:01 PM

    Thanks Ashley!!! Your work is amazing!

    ReplyDelete
  2. CYDSeptember 30, 2009 at 8:04 PM

    I am just sitting here browsing your fun site (which I found through a friend) and I found this post and it was like being punched in the stomach. My nephew died 2 years ago from CDH after a 6 month fight. We proudly wear turquoise every March 31st. Thanks for giving this devastating condition a shout out.
    Cydney

    ReplyDelete

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